A fever, a silence, and a fight we weren’t ready for. Our happy moments from the trip didn’t last long. By the time we got home, Adi had a slight fever. I gave him paracetamol, and it came down. He was a bit cranky but seemed better after some rest. I kept monitoring him and …
From Singapore, travelling to Indonesia was so easy. A short ferry ride of about 45–60 minutes, and we’d be in another country. In the first weekend of May 2019, we decided to go to Bintan, Indonesia. We had booked our stay at the beautiful Angsana Resort. The ferry ride was smooth, and both my kids …
Adi was doing fairly well with regular medications, therapy, and check-ups. There were good days when he didn’t have any seizures, and then there were those other days — the ones with the absence seizures. During those moments, we felt so helpless. There was nothing we could do except wait for it to pass. The …
Adi was now a very active toddler. My days were spent taking care of him and managing the home. On the surface, everything seemed okay. But in my mind, thoughts about his health and future never stopped. They kept me awake most nights. There were times I’d lie frozen in fear, overwhelmed by the unknown. …
It’s been two months since Adi left us, and every corner of our home still whispers his name. His slippers by the door, his toys on the shelf, his empty plate — they all remind us of the love we lost. The pain hasn’t eased, nor has the heartache faded. But amidst the sorrow, there’s gratitude — for the gift of Adi, and the light he brought into our lives.
Thankfully, the medications began to work, and the seizures were under control to a large extent. It pained me every single day to give him those medicines. But I kept telling myself—at least they’re working, and for that, I should be grateful. Soon after, we moved to Singapore. Life settled into a routine. Sid went …
The tears didn’t stop. Why me? Why me? Why me? What wrong had I done to deserve this?Why did you give me a baby after so many years, only to place so many conditions on him?I didn’t want to do this anymore… These thoughts kept running through my head for days. They say the grief …
Dear Adi, Today is Bohag Bihu—the Assamese New Year. It’s always been one of my favourite festivals. I loved shopping for new clothes for all of us and cooking special dishes to make the day festive. No matter where in the world we were, I always tried to make it special. But this year… I …
With trembling hands and a shaky body, I called Sid to tell him about the diagnosis. I was still holding on to a sliver of hope—hoping that maybe a doctor would say it’s not as bad as it seems. Since I couldn’t get an urgent appointment with a well-known pediatric neurologist, I went to see …
The report came the next day, and with it came another blow. My baby was diagnosed with a medical condition, a very complicated medical jargon I had heard for the first time. I frantically searched online, trying to make sense of the words on the report. What I found left me shaken. The more I …